You will see a QR code graphic (right) which, when scanned, will also take you directly to the relevant document on this website.
Below the graphic there is a short URL which can be typed into a web browser, and will take you to the same document (if no QR code scanner is available).
This graphic also appears on the print versions of the relevant patient information leaflet, from where it can also be scanned.
The QR code graphic can be deployed to:
- patient (or clinician) correspondence;
- posters in your department; and
- your own information leaflets.
(i.e. anywhere where the recipient may wish to download the document to a mobile device and read it off-line).
To save the QR code for your own use, right click the graphic, then select the option to save/download it to your computer
Below is a short (5 minute) video animation created by Maj Shabbir (Consultant Urological Surgeon at Guy's Hospital), Rachel Kesse-Adu (Consultant Haematologist at Guy's Hospital), the Sickle Cell Society UK and supported with funding from Boston Scientific, working with an animation company Elara.
The animation recently won three awards at the 77th Annual association of Medical Illustrators Conference , including the Award for Excellence in Education, the inaugural Social Impact Award for work that addresses diversity and inclusive representation, and was handpicked from all attendees for The Member's Choice Award, the highest honor in the organisation.
Sickle cell disease is one of the most common genetic disorders worldwide. It's the underlying cause for approximately 60% of all paediatric priapism cases. Although 75% of patients will get their first episode under the age of 20 (mean age 15), only 5% of men with sickle cell ever recall learning about priapism as a possible complication of their disease. The outcome of this condition is time sensitive - in most published series 90% of patients present after 12 hours, and 1 in 3 after 24 hours with irreversible damage. Almost 50% of surveyed men have never had treatment for their priapism, common themes for this being fear, embarrassment and a history of bad experiences when presenting to health care professionals.
Our video is aimed at boys with sickle cell - and their carers - to give them an idea of what priapism is, and what to do if they ever get one. It has had excellent feedback as a helpful tool for urology and haematology teams.